Clients request, question, or reject information related to their diagnoses at various times, and in a myriad of ways (e.g., “My partner says I have Borderline Personality Disorder, do I?”, “My mood is all over the place! Do you think I'm bipolar?”, “Maybe it's ADHD?”). At intake, clients seek clarification of the nature of their difficulties, as well as reassurance that their problems are understandable and treatable. Throughout treatment, they may wonder if therapy is working and if the therapist’s conceptualization of the problem is lacking or flawed. A proportion of clients will even contest their therapists’ opinion and/or propose alternative diagnoses. Such instances of doubt may occur following stressful life events, media exposure, and conversations with others—including other health professionals—and are apt to increase in this era of easy and rapid access to an ever-increasing wealth of information. Despite their normativity, such discussions are often challenging, uncomfortable, and anxiety-provoking encounters for clinicians—especially for those beginning their clinical careers, and in cases of so-called “difficult” diagnoses—i.e., conditions associated with significant morbidity, stigmatization, and/or poor prognoses (Holland, Holland, Geary, Marchini, & Tross, 1987; Mitchell, 2007). Consequently, many therapists circumvent or entirely avoid such conversations.
These reactions are not uncommon. Let us consider the process of therapist reflection and decision making in the context of a single diagnosis – for purposes of this article, borderline personality disorder (BPD). BPD is a complex mental illness characterized by pervasive instability across several affect-related domains, and is frequently accompanied by impulsive and self-damaging behaviors [e.g., suicidal and non-suicidal self-injury, substance abuse, disordered eating, risky sexual activity, aggression, reckless spending, etc. (American Psychiatric Association, 2013; Skodol et al., 2002)]. Despite its ubiquitous prevalence across clinical settings, as well as the severe degree of distress and functional impairment associated with the disorder, many clinicians struggle to disclose this diagnosis to their patients. Available evidence suggests that mental health professionals are more reluctant to recognize and disclose BPD diagnoses to clients than they are other psychiatric disorders – including schizophrenia (Clafferty, McCabe, & Brown, 2001; Gunderson, 2011; McDonald-Scott, Machizawa, & Satoh, 1992; Paris, 2007). Indeed, a recent study conducted on a sample of U.S. psychiatrists found that not only did over half (57%) fail to disclose BPD, but over one-third (37%) also refrained from documenting the diagnosis in patients’ charts (Sisti, Segal, Siegel, Johnson, & Gunderson, 2016). This practice appears to be even more prominent among those treating adolescents (e.g., Griffiths, 2011; Koehne, Hamilton, Sands, & Humphreys, 2013; Laurenssen, Hutsebaut, Feenstra, Van Busschbach, & Luyten, 2013). Although several empirically-supported treatments (e.g., dialectical behavior, schema-focused, mentalization-based, and transference-focused therapies) have been found effective at relieving BPD symptoms and contributing to lasting improvements in functioning and quality of life (Gunderson, 2011), many clinicians continue to diagnose and treat 1) the co-occurring conditions that frequently manifest among those with BPD (e.g., post-traumatic stress disorder or complex PTSD), or 2) another unrelated psychiatric illness with a similar presentation (e.g., bipolar disorder) that has a better pharmacological prognosis.
Why Can These Dialogues Be So Difficult?
Barriers to diagnostic disclosure are varied, and result from an interaction of several factors. Although some of these concerns may be diagnosis-specific—such as fears of initiating or perpetuating self-harm behaviors among those with BPD (Howe, 2013; Lequesne & Hersh, 2004)—the majority apply to other forms of severe mental illness (e.g., schizophrenia, dementia). The MUM (“keeping Mum about Undesirable Messages”) effect, or propensity to remain silent when posed with the challenge of delivering unfavorable news (Rosen & Tesser, 1970), is one useful framework for understanding why it is so hard for therapists to initiate these conversations with clients. Studies have shown that decision-making regarding diagnostic disclosure among psychologists and social workers is influenced by the MUM effect (Merker, Hanson, & Postin, 2010; Rumpza, 2015), which attributes such reticence to a combination of concern for the recipient, societal norms, and the communicator (Tesser & Rosen, 1975). In terms of their clients, practitioners may be wary of potential iatrogenic effects, such as self-fulfilling prophecy, demoralization and decline in morale and mental/physical health, patient over-identification with the label, and self-stigmatization (Davidson & Roe, 2007; Garner, 1985). Public stigma about serious mental illness (e.g., Corrigan, 1998) can also be a major deterrent to diagnostic openness. Well-intentioned therapists may rightfully fear that a label will bias the way friends, family, medical professionals, and society view the affected individual (Corrigan, Green, Lundin, Kubiak, & Penn, 2001). Related considerations include how a diagnosis such as BPD may marginalize patients in terms of their access to future mental health care services (Kealy & Ogrodniczuk, 2010).
Finally, there are those who question the validity of the BPD diagnosis. Indeed, the DSM system allows for 256 combinations of symptomatic profiles leading to diagnosis (Biskin & Paris, 2012), meaning that two individuals with BPD may end up overlapping on only one of nine criteria (five are necessary for diagnosis). Although much research supports the existence and utility of diagnosing BPD among adolescents, many clinicians continue adhering to scientifically-antiquated practice guidelines advocating caution in youth personality disorder diagnoses (Chanen, Jovev, McCutcheon, Jackson, & McGorry, 2008; Kaess, Brunner, & Chanen, 2014; Sharp, Ha, Michonski, Venta, & Carbone, 2012; Sharp & Tackett, 2014). Some argue that BPD’s multidimensionality may obscure specific treatment targets (Paris, 2009); promisingly, empirical investigations exploring clinically-meaningful subtypes—a related concern—are now underway (Johnson, Temes, Scala, & Levy, 2017; Sleuwaegen et al., 2017). Nevertheless, it has been argued that conferring other (less controversial) diagnoses or withholding diagnosis entirely may be more harmful, as it precludes patients and their therapists from accurately prognosticating about expected treatment response (Paris, 2005b). Therapists understand that diagnostic classification systems are ever-evolving products of ongoing empirical research and yet must rely upon current information to help treat patients until more refined constructs are established (for more on the subject of diagnostic validity versus utility, see Kendell & Jablensky, 2003). For these and other reasons, skirting around the issue of BPD with clients, diagnostic hedging and/or partial diagnostic disclosure, and “backstage borderline talk”—in which members on coordinated care teams discuss a clients’ borderline diagnosis amongst themselves without sharing it with the affected individuals—are frequent and unfortunate clinical phenomena (McNab, McCutcheon, & Chanen, 2015).
Benefits of Disclosure
Thus, we argue there can be enormous utility to the diagnostic process if handled properly by a trained and empathic provider. Obtaining the diagnosis provides many clients with a much-needed sense of relief often after years of suffering, and helps explain the multifarious set of symptoms with which they have struggled. Regardless of their condition, clients tend to report significant increases in positive mood associated with feelings of hope and validation following diagnostic feedback provision (Holm-Denoma et al., 2008). In terms of BPD, research has shown that patients benefit after receiving the diagnosis and “often feel as if the clinical picture ‘finally makes sense’” (Biskin & Paris, 2012). Brief psychoeducation immediately following BPD diagnosis has actually been shown to attenuate core symptoms of the disorder (Zanarini & Frankenburg, 2008), demonstrating its function as a clinical intervention in and of itself. The aspect of substantiating and validating may be particularly important for those with BPD, many of whom have experienced chronic emotional invalidation in central attachment relationships (Linehan, 1993). Probst (2015) has described naming as a form of validation that functioned to “[welcome one] into one’s tribe” (p. 246).
When imparted in a client-centered manner, the act of sharing a BPD diagnosis can strengthen the therapeutic relationship and lead to greater patient engagement and improved outcomes (Biskin & Paris, 2012). Clients are often empowered when they feel they are actively involved in clinical decisions regarding their health and wellbeing (Blackhall, Frank, Murphy, & Michel, 2001). There are benefits to clinicians as well. Knowledge that a client has BPD allows clinicians to account for a co-occurring and heterogeneous set of cognitive, affective, and behavioral symptoms in the same individual (Paris, 2007). Such information helps guide treatment formulation and clinical decision-making. Informed providers who employ/recommend appropriate strategies with their BPD clients are more effective providers, and vice-versa. Diagnostic disclosure, when communicated effectively, can thus have significant bearing on treatment course and outcome.
Ethical Considerations: The Dialectic of Help Versus Harm
There are several accompanying ethical considerations that treatment providers must entertain when disclosing psychiatric diagnoses, many of which can be tied to the APA principle of beneficence/nonmaleficence, but that also encompass those of fidelity/responsibility, integrity, and respect for people’s rights/dignity (American Psychological Association, 2016). For example, some argue that disclosing diagnosis of serious mental illness has the potential to harm patients by instilling stigma, fear, or distress, disrupt treatment, or even prompt suicide (see Pinner, 2000).
Clinicians may rationalize aphorisms such as “what you don’t know doesn’t hurt you” and “ignorance is bliss” as reasons to censor diagnostic information and shield clients from potentially upsetting news about their mental health; however, there is thus far no evidence to support this view (Yeung & Kam, 2008). Indeed, in spite of occasional increases in short-term distress following diagnostic provision, long-term benefits have consistently been documented across serious mental health conditions (Erde, Nadal, & Scholl, 1988; Holm-Denoma et al., 2008; Paris, 2007). In fact, Fallowfield, Jenkins, and Beveridge (2002) have described how deception—whether it manifests via outright avoidance or the use of ambiguous or deliberately misleading language when communicating about diagnoses—can engender misunderstandings and prevent clients from participating in key aspects of their care. Indeed, inadequate disclosure of a BPD diagnosis can lead to confusion about the treatment process, therapeutic targets, and expectations regarding improvement (Biskin & Paris, 2012). Without awareness of their illness and associated prognosis, patients are deprived of autonomy and the ability to consent to a course of treatment.
Such a lack of knowledge has implications regarding the manner in which patients make basic decisions related to their health, including planning for crises and making psychiatric advance directives (Clements, Cizman, Forchuk, Pallaveshi, & Rudnick, 2015). This “right to know” is a fundamental ethical standard that is covered under several sections of the American Psychological Association Code of Conduct [see Informed Consent (Section 3.10), Informed Consent in Assessments (Section 9.03), and Informed Consent to Therapy (Section 10.01) in Ethical Principles of Psychologists and Code of Conduct (American Psychological Association, 2016)]. Withholding pertinent information about a client’s mental health status can also be considered an affront to basic respect (Yeung & Kam, 2008). In consideration of the right to self-determination, we recommend that clinicians at the least inquire about and comply with their clients’ preferences regarding knowledge of their diagnosis.
Caveats to disclosure: The importance of context
While the literature indicates that a majority of mental health service users (62%–88%) desire truthfulness regarding diagnosis (Milton & Mullan, 2014), therapists should always weigh the costs and benefits on a case-by-case basis (Marzanski, Jainer, & Avery, 2002). Although limited, extant research indicates that certain groups may prefer varying degrees of disclosure. In particular, culture and age have emerged as potential moderating factors on the relationship between disclosure of medical diagnoses and outcome (Blackhall et al., 2001; Kagawa-Singer & Blackhall, 2001); however, few investigations have been conducted in the area of mental illness specifically. Generally speaking, certain patient populations (e.g., those from collectivistic cultures, with less formal education, of lower SES, at older ages) tend to view disclosure in more negative terms, and may want family members to be more integral parts of managing their care (Blackhall et al., 2001; Kwak & Salmon, 2007). Clinicians must ultimately integrate cultural competence into their practices, while simultaneously precluding stereotypes from overshadowing individual client preferences regarding disclosure and truth-telling (Berkman & Ko, 2009).
Timing is another factor to consider, both in terms of how providing a diagnosis will affect the patient and the therapeutic relationship (Fox, Lafortune, Boustani, & Brayne, 2013). Some settings, such as the Dialectical Behaviour Therapy (DBT) Centre of Vancouver, incorporate structured, comprehensive psychodiagnostic assessments and subsequent feedback into the intake process; however, such standards are not the case in all clinics. While early disclosure is generally advocated (Post & Whitehouse, 1995), there are cases in which strengthening the therapeutic relationship prior to such revelation may be beneficial.
Examples include cases wherein clients present for treatment of a different and unrelated, yet valid problem (e.g., grief), with issues of imminent risk, and/or with concurrent problems such as extreme paranoia or distrust of the mental health care system. However, waiting too long before sharing a diagnosis may have equally detrimental effects. It can seriously compromise trust if a client hears about a diagnosis from another source, and delayed disclosure may prevent critical early intervention (Chanen et al., 2008; Paris, 2005a; Sharp & Tackett, 2014) and may fail to add clinically significant predictive utility to treatment for concurrent disorders, such as depression (Newton-Howes, Mulder, Ellis, Boden, & Joyce, in press). Unfortunately, there remains a dearth of empirical investigations reporting on this topic, and more research is needed before conclusions regarding the effects of diagnostic disclosure timing can be reached.
Practical Considerations for Disclosing Mental Health Diagnoses
How might we broach this challenging topic with clients? Several protocols for mental health diagnostic disclosure have been developed (Milton & Mullan, 2014). These include the broader SPIKES technique, adapted from oncology (Cleary, Hunt, Escott, & Walter, 2010; Cleary, Hunt, & Horsfall, 2009; Cleary, Hunt, & Walter, 2010) as well as other, more targeted illness-specific (Levin et al., 2011; Outram et al., 2014) and culturally-sensitive (Hwang, 2008) models. What unites these approaches is their focus on adequate preparation, appropriate and accurate use of assessment tools, face-to-face communication, the incorporation of idiographic variables (especially client perception of the problem), addressing the issue of stigma, sensitive and empathic responding, and continued follow-up (Milton & Mullan, 2014; Milton, Mullan, MacCann, & Hunt, 2017; Pinner, 2000). The importance of devoting adequate time to such discussions is also essential, yet often overlooked in terms of its effects of attenuating negative effects associated with receiving a difficult diagnosis (Gallagher, Arber, Chaplin, & Quirk, 2010). We encourage psychology training programs to implement discussion of such communication points, which are summarized in Table 1.
Specific Tips When Imparting a BPD Diagnosis
Once a clinician has obtained client permission, conducted a valid assessment, and determined the appropriateness of a BPD diagnosis, there are particular steps that can be taken to facilitate effectual disclosure. Professor Alexander Chapman, a psychologist who has extensive research and clinical experience with BPD, suggests that clinicians begin with a statement akin to the following: “Given the collection of symptoms/difficulties you’ve been experiencing over x period of time, my perception is that you are dealing with something called BPD” (A. L. Chapman, personal communication, October 2015).
Those with BPD expertise also recommend showing the client a list of diagnostic criteria and asking about the degree to which they identify with any of them (Biskin & Paris, 2012). This step can be linked with psychoeducation about the disorder, including a discussion about the epidemiology and biosocial processes involved in illness generation and maintenance. Depending on client preference, clinicians may use this opportunity to offer book recommendations or links to BPD support resources [e.g., National Education Alliance for Borderline Personality Disorder (NEA-BPD); Treatment and Research Advancements for Borderline Personality Disorder (TARA)]. Clients should be given sufficient time to process this information; the combination of assessment and information delivery may require several sessions. Discussion about the various forms of stigma and their significance for the client will need to be addressed, and may continue throughout treatment. Finally, dialogue pertaining to recent improvements in psychotherapeutic treatment for BPD, psychopharmacological options, and prognosis will potentially help alleviate some of the anxiety that accompanies diagnosis, and may in fact provide a measure of hope. Indeed, if communicated in a competent and empathic manner, it is thought that diagnostic disclosure may actually strengthen the working alliance and improve treatment compliance (Paccaloni, Pozzan, & Zimmermann, 2004; Shergill, Barker, & Greenberg, 1997; Zanarini & Frankenburg, 2008).
Initiating disclosure of a mental health diagnosis can be challenging and feel like a test of one’s clinical skills. Nevertheless, we believe that these conversations are essential to the therapeutic process, and ultimately, in clients’ best interests. When conducted in a sensitive, client-centered manner that is linked to clients’ stated goals and values, such dialogues can offer much-needed validation, assist in organizing treatment planning, and lead to better outcomes.
Cite This Article
Austin, S., & Butler, S. (2017). What you don’t know might hurt you: Disclosing and discussing “difficult” mental health diagnoses. Psychotherapy Bulletin, 52(2), 14-19.
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.
American Psychological Association. (2016). Ethical principles of psychologists and code of conduct. Retrieved from http://www.apa.org/ethics/code/
Berkman, C. S., & Ko, E. (2009). Preferences for disclosure of information about serious illness among older Korean American immigrants in New York City. Journal of Palliative Medicine, 12(4), 351-357. doi:10.1089/jpm.2008.0236
Biskin, R. S., & Paris, J. (2012). Diagnosing borderline personality disorder. Canadian Medical Association Journal, 184(16), 1789-1794. doi:10.1503/cmaj.090618
Blackhall, L. J., Frank, G., Murphy, S., & Michel, V. (2001). Bioethics in a different tongue: The case of truth-telling. Journal of Urban Health, 78(1), 59-71. doi:10.1093/jurban/78.1.59
Chanen, A. M., Jovev, M., McCutcheon, L. K., Jackson, H. J., & McGorry, P. D. (2008). Borderline personality disorder in young people and the prospects for prevention and early intervention. Current Psychiatry Reviews, 4(1), 48-57. doi:10.2174/157340008783743820
Clafferty, R. A., McCabe, E., & Brown, K. W. (2001). Conspiracy of silence? Telling patients With schizophrenia their diagnosis. Psychiatric Bulletin, 25(9), 336-339. doi:10.1192/pb.25.9.336
Cleary, M., Hunt, G. E., Escott, P., & Walter, G. (2010). Receiving difficult news: Views of patients in an inpatient setting. Journal of Psychosocial Nursing and Mental Health Services, 48(6), 40-48. doi:10.3928/02793695-20100504-01
Cleary, M., Hunt, G. E., & Horsfall, J. (2009). Delivering difficult news in psychiatric settings. Harvard Review of Psychiatry, 17(5), 315-321. doi: 10.3109/10673220903271780
Cleary, M., Hunt, G. E., & Walter, G. (2010). Delivering difficult news. Views of mental health staff in inpatient settings. Journal of Psychosocial Nursing and Mental Health Services, 48(6), 32-39. doi:10.3928/02793695-20100504-02
Clements, R. L. H., Cizman, J. L., Forchuk, C., Pallaveshi, L., & Rudnick, A. (2015). Ethics in relation to recovery from mental illness. In J. Z. Sadler, K. W. M. Fulford, & C. W. van Staden (Eds.), The Oxford handbook of psychiatric ethics (pp. 1384-1401). New York, NY: Oxford University Press.
Corrigan, P. W. (1998). The impact of stigma on severe mental illness. Cognitive and Behavioral Practice, 5(2), 201-222. doi:10.1016/S1077-7229(98)80006-0
Corrigan, P. W., Green, A., Lundin, R., Kubiak, M. A., & Penn, D. L. (2001). Familiarity with and social distance from people who have serious mental illness. Psychiatric Services, 52(7), 953-958. doi:10.1176/appi.ps.52.7.953
Davidson, L., & Roe, D. (2007). Recovery from versus recovery in serious mental illness: One strategy for lessening confusion plaguing recovery. Journal of Mental Health, 16(4), 459-doi:10.1080/09638230701482394
Erde, E. L., Nadal, E. C., & Scholl, T. O. (1988). On truth telling and the diagnosis of Alzheimer’s disease. The Journal of Family Practice, 26(4), 401-406.
Fallowfield, L. J., Jenkins, V. A., & Beveridge, H. A. (2002). Truth may hurt but deceit hurts more: Communication in palliative care. Palliative Medicine, 16(4), 297-303. doi:10.1191/0269216302pm575oa
Fox, C., Lafortune, L., Boustani, M., & Brayne, C. (2013). The pros and cons of early diagnosis in dementia. British Journal of General Practice, 63(612), e510-e512. doi:10.3399/bjgp13X669374
Gallagher, A., Arber, A., Chaplin, R., & Quirk, A. (2010). Service users’ experience of receiving bad news about their mental health. Journal of Mental Health, 19(1), 34-42. doi:10.3109/09638230903469137
Garner, D. M. (1985). Iatrogenesis in anorexia nervosa and bulimia nervosa. International Journal of Eating Disorders, 4(4), 701-726. doi:10.1002/eat.2260040427
Griffiths, M. (2011). Validity, utility and acceptability of borderline personality disorder diagnosis in childhood and adolescence: Survey of psychiatrists. The Psychiatrist, 35(1), 19-22. doi:10.1192/pb.bp.109.028779
Gunderson, J. G. (2011). Borderline personality disorder. New England Journal of Medicine, 364(21), 2037-2042. doi: 10.1056/NEJMcp1007358
Holland, J. C., Holland, J. C., Geary, N., Marchini, A., & Tross, S. (1987). Psychosocial issues: An international survey of physician attitudes and practice in regard to revealing the diagnosis of cancer. Cancer Investigation, 5(2), 151-154. doi:10.3109/07357908709018468
Holm-Denoma, J. M., Gordon, K. H., Donohue, K. F., Waesche, M. C., Castro, Y., Brown, J. S., . . . Joiner, T. J. (2008). Patients’ affective reactions to receiving diagnostic feedback. Journal of Social and Clinical Psychology, 27(6), 555-575. doi:10.1521/jscp.2008.27.6.555
Howe, E. (2013). Five ethical and clinical challenges psychiatrists may face when treating patients with borderline personality disorder who are or may become suicidal. Innovations in Clinical Neuroscience, 10(1), 14-19.
Hwang, W. C. (2008). Diagnostic nondisclosure of schizophrenia to Chinese American patients. Asian Journal of Counselling, 15(1), 1-31.
Johnson, B. N., Temes, C. M., Scala, J. W., & Levy, K. N. (2017, April). Understanding dimensions and types of borderline personality disorder through factor mixture modeling. Paper presented at the 2017 annual convention of the North American Society for the Study of Personality Disorders, New York, NY.
Kaess, M., Brunner, R., & Chanen, A. (2014). Borderline personality disorder in adolescence. Pediatrics, 134(4), 782-793.
Kagawa-Singer, M., & Blackhall, L. J. (2001). Negotiating cross-cultural issues at the end of life: “You got to go where he lives.” JAMA, 286(23), 2993-3001. doi:10.1001/jama.286.23.2993
Kealy, D., & Ogrodniczuk, J. S. (2010). Marginalization of borderline personality disorder. Journal of Psychiatric Practice, 16(3), 145-154. doi:10.1097/01.pra.0000375710.39713.4d
Kendell, R., & Jablensky, A. (2003). Distinguishing between the validity and utility of psychiatric diagnoses. American Journal of Psychiatry, 160(1), 4-12. doi:10.1176/appi.ajp.160.1.4
Koehne, K., Hamilton, B., Sands, N., & Humphreys, C. (2013). Working around a contested diagnosis: Borderline personality disorder in adolescence. Health, 17(1), 37-56. doi:10.1177/1363459312447253
Kwak, J., & Salmon, J. R. (2007). Attitudes and preferences of Korean-American older adults and caregivers on end-of-life care. Journal of the American Geriatrics Society, 55(11), 1867-1872. doi:10.1111/j.1532-5415.2007.01394.x
Laurenssen, E. M. P., Hutsebaut, J., Feenstra, D. J., Van Busschbach, J. J., & Luyten, P. (2013). Diagnosis of personality disorders in adolescents: A study among psychologists. Child and Adolescent Psychiatry and Mental Health, 7(1), 3. doi:10.1186/1753-2000-7-3
Lequesne, E. R., & Hersh, R. G. (2004). Disclosure of a diagnosis of borderline personality disorder. Journal of Psychiatric Practice, 10(3), 170-176. doi:10.1097/00131746-200405000-00005
Levin, T. T., Kelly, B. J., Cohen, M., Vamos, M., Landa, Y., & Bylund, C. L. (2011). Case studies in public-sector leadership: Using a psychiatry e-list to develop a model for discussing a schizophrenia diagnosis. Psychiatric Services, 62(3), 244-246. doi:10.1176/ps.62.3.pss6203_0244
Linehan, M. M. (1993). Cognitive-behavioral treatment of borderline personality disorder. New York, NY: The Guilford Press.
Marzanski, M., Jainer, A. K., & Avery, C. (2002). What have you been told about your illness? Information about diagnosis among psychiatric inpatients. International Journal of Psychiatry in Clinical Practice, 6(2), 103-106. doi:10.1080/136515002753724108
McDonald-Scott, P., Machizawa, S., & Satoh, H. (1992). Diagnostic disclosure: A tale in two cultures. Psychological Medicine, 22(1), 147-157. doi: 10.1017/S0033291700032803
McNab, C., McCutcheon, L., & Chanen, A. (2015). Borderline personality disorder, stigma and young people. Retrieved from https://www.orygen.org.au/Our-Research/Research-Areas/Personality-Disorder/Research-Bulletin-BPD.aspx?ext=.
Merker, B. M., Hanson, W. E., & Postin, J. M. (2010). National survey of psychologists’ training and practice in breaking bad news: A mixed methods study of the MUM effect. Journal of Clinical Psychology in Medical Settings, 17(3), 211-219. doi:10.1007/s10880-010-9197-0
Milton, A. C., & Mullan, B. A. (2014). Communication of a mental health diagnosis: A systematic synthesis and narrative review. Journal of Mental Health, 23(5), 261-270. doi:10.3109/09638237.2014.951474
Milton, A. C., Mullan, B., MacCann, C., & Hunt, C. (2017). An evaluation of communication barriers and facilitators at the time of a mental health diagnosis: A survey of health professional practices. Epidemiology and Psychiatric Sciences, 1-12. doi:10.1017/S2045796016001153
Mitchell, A. J. (2007). Reluctance to disclose difficult diagnoses: A narrative review comparing communication by psychiatrists and oncologists. Supportive Care in Cancer, 15(7), 819-828. doi:10.1007/s00520-007-0226-y
Newton-Howes, G., Mulder, R., Ellis, P. M., Boden, J. M., & Joyce, P. (in press). The predictive utility of personality disorder in depression: Comparison of outcomes and taxonomic approach. Journal of Personality Disorders.
Outram, S., Harris, G., Kelly, B., Cohen, M., Sandhu, H., Vamos, M., . . . Loughland, C. (2014). Communicating a schizophrenia diagnosis to patients and families: A qualitative study of mental health clinicians. Psychiatric Services, 65(4), 551-554. doi:10.1176/appi.ps.201300202
Paccaloni, M., Pozzan, T., & Zimmermann, C. (2004). Being informed and involved in treatment: What do psychiatric patients think? A review. Epidemiologia e psichiatria sociale, 13(4), 270-283.
Paris, J. (2005a). Diagnosing borderline personality disorder in adolescence. Adolescent Psychiatry, 29, 237-247.
Paris, J. (2005b). The diagnosis of borderline personality disorder: Problematic but better than the alternatives. Annals of Clinical Psychiatry, 17(1), 41-46.
Paris, J. (2007). Why psychiatrists are reluctant to diagnose: Borderline personality disorder. Psychiatry (Edgmont), 4(1), 35-39.
Paris, J. (2009). The treatment of borderline personality disorder: Implications of research on diagnosis, etiology, and outcome. Annual Review of Clinical Psychology, 5, 277-290.doi:10.1146/annurev.clinpsy.032408.153457
Pinner, G. (2000). Truth-telling and the diagnosis of dementia. The British Journal of Psychiatry, 176(6), 514-515. doi:10.1192/bjp.176.6.514
Post, S. G., & Whitehouse, P. J. (1995). Fairhill guidelines on ethics of the care of people with Alzheimer’s disease: A clinical summary. Journal of the American Geriatrics Society, 43(12), 1423-1429.
Probst, B. (2015). Queen of the owls: Metaphor and identity in psychiatric diagnosis. Social Work In Mental Health, 13(3), 235-251. doi:10.1080/15332985.2014.893946
Rosen, S., & Tesser, A. (1970). On reluctance to communicate undesirable information: The MUM effect. Psychological Reports, 29(2), 651-654. doi:10.2466/pr0.19188.8.131.521
Rumpza, L. (2015). Borderline Personality Disorder: The frequency of disclosure and the choice to disclose (Unpublished doctoral dissertation). Walden University, Minneapolis, MN.
Sharp, C., Ha, C., Michonski, J., Venta, A., & Carbone, C. (2012). Borderline personality disorder in adolescents: evidence in support of the Childhood Interview for DSM-IV Borderline Personality Disorder in a sample of adolescent inpatients. Comprehensive Psychiatry, 53(6), 765-774.
Sharp, C., & Tackett, J. L. (2014). Introduction: An idea whose time has come. In C. Sharp & J.Tackett (Eds.), Handbook of borderline personality disorder in children and adolescents (pp. 3-8). New York, NY: Springer Publishing.
Shergill, S. S., Barker, D., & Greenberg, M. (1997). Communication of psychiatric diagnosis. Social Psychiatry and Psychiatric Epidemiology, 33(1), 32-38. doi:10.1007/s001270050019
Sisti, D., Segal, A. G., Siegel, A. M., Johnson, R., & Gunderson, J. (2016). Diagnosing, disclosing, and documenting borderline personality disorder: A survey of psychiatrists’ practices. Journal of Personality Disorders, 30(6), 848-856. doi:10.1521/pedi_2015_29_228
Skodol, A. E., Gunderson, J. G., Pfohl, B., Widiger, T. A., Livesley, W. J., & Siever, L. J. (2002). The borderline diagnosis I: Psychopathology, comorbidity, and personality structure. Biological Psychiatry, 51(12), 936-950. doi:10.1016/S0006-3223(02)01324-0
Sleuwaegen, E., Claes, L., Luyckx, K., Berens, A., Vogels, C., & Sabbe, B. (2017). Subtypes in borderline patients based on reactive and regulative temperament. Personality and Individual Differences, 108(1), 14-19. doi:10.1016/j.paid.2016.11.065
Tesser, A., & Rosen, S. (1975). The reluctance to transmit bad news. Advances in Experimental Social Psychology, 8, 193-232. doi: 10.1016/S0065-2601(08)60251-8
Yeung, A., & Kam, R. (2008). Ethical and cultural considerations in delivering psychiatric diagnosis: Reconciling the gap using MDD diagnosis delivery in less-acculturated Chinese patients. Transcultural Psychiatry, 45(4), 531-552. doi:10.1177/1363461508100781
Zanarini, M. C., & Frankenburg, F. R. (2008). A preliminary, randomized trial of psychoeducation for women with borderline personality disorder. Journal of Personality Disorders, 22(3), 284-290. doi:10.1521/pedi.2008.22.3.284